Wimly is patient-founded, patient-led, and built to serve the rare disease community. Not backed by venture capital or pharmaceutical investment.
Wimly AB is a Swedish company building the Patient Intelligence platform for rare disease. Every design decision, data policy, and partnership choice is made with the interests of patients, families, and caregivers as the primary constraint.
Wimly was founded by Håkan Göranson, an SCA3/MJD patient and software engineer based in Sweden, to build a tool that helps rare disease patients document their daily experience and share it with their clinical team. The sole product is the Wimly Patient Intelligence platform. There are no other commercial interests.
The platform is in active development. A small founding team is building it, an active Scientific Advisory Board of clinical and research experts is shaping it, and patient organisations in the SCA community are committed to piloting it. Wimly is a commercial business — it is built to be financially sustainable — and the funding model is structured so that commercial interests never override the interests of the people the platform serves.
The team
Wimly is currently a small founding team. The people building this platform are listed below.
Håkan Göranson
Founder and CEO
Responsible for product vision, platform architecture, commercial strategy, and stakeholder relationships. Leads the design of Wimly's Patient Intelligence infrastructure and drives the clinical, research, and patient organisation partnership programme. Also the reason the platform exists — as an SCA3/MJD patient, Håkan built the tool he needed but could not find.
Serial entrepreneur with thirty years of experience building and leading companies in ICT, payment processing, and sustainable mobility, across Sweden, the UK, France, and Norway. Background in computer science and full-stack software development, with a hands-on approach to product architecture, AI integration, and rapid development. Also founder of The Valfrid Foundation.
Malin Göranson
Adviser, family and caregiver perspective
Malin's professional background in family systems and her direct experience of rare disease within the family inform the design of the caregiver layer of the Wimly platform — how it captures what family members and caregivers observe, and how it gives that knowledge somewhere to go.
Social counsellor at Halmstad municipality, where she works with family treatment and young people. Twenty-five years of professional experience in family therapy, youth counselling, and addiction support across several Swedish municipalities. Trained in systemic and interactionist family therapy and feedback-informed treatment at Linnaeus University and the International Center for Clinical Excellence.
Krister Göranson
Adviser, marketing, communications, and PR
Advises on how Wimly presents itself to the public and to institutional partners — the language, positioning, and communications strategy that build trust with clinical, research, and patient organisation audiences.
Communications director and strategic adviser with a career spanning global industry, venue management, and independent consultancy. Former Vice President of Corporate Communications at AB Volvo, where he led global communications. Subsequently CEO of Scandinavium arena in Gothenburg, and founder of the prize-winning communications consultancy 31cc, advising Swedish companies on strategic communications and crisis management.
Scientific Advisory Board
The Wimly Scientific Advisory Board is an active group of independent clinicians, researchers, and scientific experts who advise on the clinical and scientific dimensions of the platform — including data architecture, research methodology, clinical content, and governance. Members are not employees of Wimly AB. Institutional affiliations listed below are for identification purposes and do not represent institutional endorsement of or partnership with Wimly.
Dr. Christopher Southan
Honorary Professor, University of Edinburgh; TW2Informatics
Honorary Professor at the University of Edinburgh (Deanery of Biomedical Sciences) and independent consultant in bioinformatics and cheminformatics. His background spans pharmaceutical R&D data infrastructure at AstraZeneca, the IUPHAR/BPS Guide to PHARMACOLOGY database at Edinburgh University, and intelligence analysis at Medicines Discovery Catapult; he advises Wimly on research data standards, data quality, and the intersection of patient-generated data with drug discovery infrastructure.
Dr. Martin Paucar Arce
Neurologist, Karolinska University Hospital; Researcher, Karolinska Institutet
Neurologist at the Karolinska University Hospital and researcher in the Department of Clinical Neuroscience at Karolinska Institutet. His work focuses on the genetics and clinical presentation of spinocerebellar ataxias and related movement disorders; he was a lead author on the 2023 study that identified the genetic cause of SCA4.
Dr. José Laffita Mesa
Post-doctoral Researcher, Karolinska Institutet
Post-doctoral researcher at Karolinska Institutet with over eight years of experience in translational neurogenetics, focusing on repeat-expansion disorders and rare neurodegenerative diseases. His work integrates molecular assays and circRNA-based biomarkers with clinical data to advance diagnostics and disease modelling, with a specific focus on spinocerebellar ataxias and related conditions.
Dr. Maurizio Cundari
Neuropsychologist, Helsingborg Hospital; PhD Candidate, Lund University
Neuropsychologist and PhD candidate at Lund University, where his research focuses on neurocognition in spinocerebellar ataxias and other cerebellar and neurodegenerative conditions, specifically how the cerebellum contributes to cognitive dysfunction beyond its classical role in motor control. Clinically he works at the Neurology Unit of Helsingborg Hospital, with additional experience in neuropsychiatric assessment.
Dr. Anders Rasmussen
Associate Professor in Neurophysiology, Lund University
Associate Professor in Neurophysiology and Senior Lecturer at Lund University, where he leads the Associative Learning research group within Cognitive Science. His research focuses on cerebellar function and motor learning, with a parallel strand of work on cerebellar involvement in ataxias, ADHD, and autism.
Dr. Andreas Puschmann
Adjunct Professor; Clinical Neurogenetics, Lund University
Adjunct Professor, consultant neurologist, and project manager of the Clinical Neurogenetics research group at Lund University. His research focuses on the genetic causes of rare movement disorders including Parkinson's disease, dystonia, and ataxia, with 129 published research outputs spanning clinical and genomic aspects of inherited neurological conditions.
Dr. Sorina Gorcenco
Neurologist and Researcher, Clinical Neurogenetics, Lund University
Neurologist and researcher in the Clinical Neurogenetics group at Lund University, with a research focus on spinocerebellar ataxias and other rare neurological conditions. She is a co-author on the 2024 study identifying the genetic basis of SCA4 and has led clinical and genetic analyses of Swedish ataxia patient cohorts.
Dr. Morteza Najibi
Statistician and Data Scientist, Lund University
Statistician and Data Scientist at the Department of Clinical Sciences, Lund University, where his work focuses on statistical machine learning, real-world evidence modelling, and longitudinal prediction in medical science. He advises Wimly on the statistical architecture of the patient observation dataset, including the design of the longitudinal data model, survival and progression analysis, and the validation framework required to make patient-generated evidence credible to clinical and research partners.
How Wimly handles data
Users who contribute observations to Wimly own their data. Wimly holds a licence to process and use it under the terms each user consents to individually. No data is shared, sold, or made accessible to third parties without per-study, per-purpose consent from the individual user. Consent can be modified or withdrawn at any time.
The platform is built on a five-domain data separation. Personal observations, community knowledge, clinical access, research data, and commercial analytics are architecturally separated — not as a policy position but as a structural constraint in the platform's data infrastructure. Data from one domain does not flow into another without an explicit, separately consented pathway.
These principles are currently being formalised into the Wimly Data Trust Covenant, which will be published before the platform launches commercially. Full details of how data is collected, stored, and handled are in the Privacy Policy and Terms of Service.
Registration details
- Trading name
- Wimly
- Business type
- Enskild firma (Swedish sole proprietorship)
- Country
- Sweden
- Address
- Vallhamnsgatan 78, 421 66 Västra Frölunda, Sweden
- Contact
- hello@wimly.com
Clinical disclaimer
Wimly does not provide clinical advice. The platform is a personal observation and organisational tool — it helps patients document and structure their own experience. It does not diagnose, treat, or monitor disease, and it does not replace clinical care.
All observations on Wimly are patient-reported and do not constitute clinical analysis or medical assessment. All clinical judgement rests with the reviewing clinician. For medical emergencies, contact emergency services.
Content published on the Wimly platform and website is reviewed by the Scientific Advisory Board for clinical and scientific accuracy. Where uncertainty exists, it is stated. Where something is not yet known, we say so.
Legal and corporate information
Wimly is a commercial business, registered in Sweden as an enskild firma (sole trader). Incorporation as an aktiebolag (private limited company) is underway and will take effect before the platform launches commercially.
Wimly operates under Swedish law and is subject to Swedish and EU data protection law (GDPR). All data handling is governed by the platform's Privacy Policy and the Data Trust Covenant.
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